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      • Record: found
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      Carers' diaries in dementia: Is there a role in clinical practice?

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          Abstract

          Introduction

          Carers' diaries have been used in very few instances in dementia to assist with gathering information about persons with dementia in the community. The main aim of this study was to compare problems identified using diaries kept by family carers for a week with carers' oral recollection of problems.

          Method

          Carers were randomly allocated into two groups, diary and control groups. In the diary group, carers received a diary and instructions on how to complete it for 7 days.

          Results

          A total of 78 carers completed the study. The frequency of problems identified in the carers diaries was greater than in the carers' narrative accounts at day 1 and day 8. The most common problems were behavioral and cognitive problems.

          Discussion

          Carers' diaries may complement the assessment of dementia as they can provide more information on the problems faced by the persons with dementia.

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          Participant diaries as a source of data in research with older adults.

          C S Jacelon, Kristal Imperio (2005)
          Solicited participant diaries are an excellent source of data that has not been given sufficient attention as a data collection strategy for qualitative research. In a recent grounded theory study designed to explore strategies used by older adults to manage their chronic health problems, solicited diaries, when combined with an initial and follow-up interview, provided a rich source of data about day-to-day activities of participants. There were three options for maintaining the diary: written, audiotaped, or telephone conversation. The solicited diaries were guided by a set of open-ended questions designed to encourage participants to focus on daily activities and reflect on their values. The authors provide examples of data from participant diaries and suggestions for incorporating solicited participant diaries into data collection strategies for qualitative research.
          Article 0 comments Cited 42 times – based on 0 reviews     Review now
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            The use of the neuropsychiatric inventory in nursing home residents. Characterization and measurement.

            K Yarema, John Schnelle, S Barclay … (1999)
            The authors assessed the validity of the nursing home version of the Neuropsychiatric Inventory-Nursing Home Version (NPI-NH), comparing the responses of certified nurses' aides (CNAs) and licensed vocational nurses (LVNs) with research observations. Correlations were significant but moderate for all of the domains of the NPI-NH (delusions, hallucinations, agitation/aggression, depression, apathy, disinhibition, euphoria, irritability/lability, and aberrant motor disturbances) except anxiety and appetite disturbance. The LVNs' ratings showed consistently higher correlations with the researchers' behavioral observations than did the CNAs', but were moderate and generally better for residents with high levels of neuropsychiatric symptoms, thus, caution should be used with any untrained rater in the nursing home setting. The NPI-NH used by non-research staff can be useful in identifying residents with significant neuropsychiatric disturbances, but may be limited as an instrument for tracking behavioral changes.
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              Modifying the diary interview method to research the lives of people with dementia.

              Ruth A. Bartlett (2012)
              Debates about involving people with dementia in qualitative research are extensive, yet the range of methods used is limited. Researchers tend to rely on interview and/or observation methods to collect data, even though these tools might preclude participation. I modified the conventional diary interview method to include photo and audio diaries in an effort to investigate the lives of people with dementia in a participatory way. Sixteen people with dementia kept a diary-written, photo, or audio, whichever suited them best-for 1 month. The purposes of this article are to share the methodological insights gained from this process in the context of emerging literature on sensory ethnography, and to argue for the broader application of the diary interview method in dementia-related research, on the grounds that it mediates an equal relationship and makes visible the "whole person," including the environment in which that person lives.
              Article 0 comments Cited 28 times – based on 0 reviews     Review now
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                Author and article information

                Contributors
                Kunle Ashaye
                Journal
                Journal ID (nlm-ta): Alzheimers Dement (Amst)
                Journal ID (iso-abbrev): Alzheimers Dement (Amst)
                Title: Alzheimer's & Dementia : Diagnosis, Assessment & Disease Monitoring
                Publisher: Elsevier
                ISSN (Electronic): 2352-8729
                Publication date PMC-release: 13 April 2016
                Publication date Collection: 2016
                Publication date (Electronic): 13 April 2016
                Volume: 4
                Pages: 94-98
                Affiliations
                [a ]Specialist Mental Health Team for Older People, Hertfordshire Partnership University NHS Foundation Trust, Stevenage, UK
                [b ]Department of Psychology, University of Hertfordshire, Hatfield, UK
                Author notes
                [∗ ]Corresponding author. Tel.: +44 1438792032; Fax: +44 1438318630. Kunle.ashaye@ 123456hpft.nhs.uk
                Article
                Publisher ID: S2352-8729(16)30011-2
                DOI: 10.1016/j.dadm.2016.03.003
                PMC ID: 5050256
                PubMed ID: 27722195
                SO-VID: d537cb72-9e59-434b-afc5-e0d9806600c7
                Copyright © © 2016 The Authors
                License:

                This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).

                History
                Categories
                Subject: Diagnostic Assessment & Prognosis

                Keywords: carers' diaries,assessments,dementia
                Data availability:
                Keywords: carers' diaries, assessments, dementia

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