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      Quality of healthcare information on YouTube: psoriatic arthritis Translated title: Qualität von Gesundheitsinformationen auf YouTube: Psoriasisarthritis

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          Abstract

          Background

          YouTube is an increasingly used platform for medical information. However, the validity of health-related information on psoriatic arthritis (PsA) on YouTube has not been determined.

          Objective

          The purpose of this study was to evaluate the accuracy and quality of YouTube videos concerning PsA.

          Materials and methods

          A YouTube search was performed on April 18, 2021, using the keyword “psoriatic arthritis.” Two independent raters accessed the content, source, and detailed characteristics of the included videos. The reliability and quality of the videos were analyzed using the modified DISCERN score, Journal of the American Medical Association benchmark criteria score, and global quality scale score.

          Results

          Of the 200 videos screened, 155 were included in the study after applying the exclusion criteria. A total of 132 (85.2%) videos revealed useful information about PsA, whereas the remaining 23 (14.8%) were misleading. Video interaction parameters including the median number of views, views per day, likes, dislikes, and comments demonstrated no significant difference between the two groups. The videos posted by universities and professional organizations displayed the highest reliability and quality scores.

          Conclusion

          The majority of YouTube videos on PsA contained useful information. However, physicians should alert patients to the possibility of misinformation and non-validated sources. Professional organizations in the field of rheumatology, such as the American College of Rheumatology and European League Against Rheumatism, should consider collaborating with YouTube to deliver high-quality content.

          Translated abstract

          Hintergrund

          YouTube ist eine Plattform, die zunehmend für medizinische Informationen genutzt wird. Die Validität von gesundheitsbezogenen Informationen über Psoriasisarthritis auf YouTube wurde jedoch nicht nachgewiesen.

          Ziel der Arbeit

          Der Zweck dieser Studie war die Auswertung der Genauigkeit und Qualität von YouTube-Videos über Psoriasisarthritis.

          Material und Methoden

          Eine YouTube-Suche wurde am 18. April 2021 mit dem Stichwort „Psoriasisarthritis“ durchgeführt. Zwei unabhängige Prüfer griffen auf den Inhalt, die Quelle und die detaillierten Merkmale der einbezogenen Videos zu. Die Zuverlässigkeit und Qualität der Videos wurde anhand des modifizierten DISCERN-Score, des Journal of the American Medical Association Benchmark Criteria Score und des Global Quality Scale Score analysiert.

          Ergebnisse

          Von den 200 gescreenten Videos wurden nach Anwendung der Ausschlusskriterien 155 in die Studie aufgenommen. Insgesamt 132 (85,2 %) Videos enthielten nützliche Informationen über Psoriasisarthritis, während die restlichen 23 (14,8 %) irreführend waren. Die Parameter der Video-Interaktion, einschließlich der mittleren Anzahl der Aufrufe, der Aufrufe pro Tag, der Likes, der Dislikes und der Kommentare, zeigten keinen signifikanten Unterschied zwischen den beiden Gruppen. Die Videos, die von Universitäten und Berufsverbänden veröffentlicht wurden, wiesen die höchsten Werte für Zuverlässigkeit und Qualität auf.

          Schlussfolgerung

          Die meisten YouTube-Videos über Psoriasisarthritis enthielten nützliche Informationen. Dennoch müssen Ärzte ihre Patienten auf die Möglichkeit von Fehlinformationen und nichtvalidierten Quellen hinweisen. Professionelle Organisationen im Bereich der Rheumatologie wie das American College of Rheumatology und die European League Against Rheumatism sollten eine Zusammenarbeit mit YouTube in Betracht ziehen, um qualitativ hochwertige Inhalte zu liefern.

          Related collections

          Most cited references31

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          • Article: not found

          Psoriatic Arthritis

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            Is Open Access

            YouTube as a source of information on COVID-19: a pandemic of misinformation?

            Introduction The COVID-19 pandemic is this century’s largest public health emergency and its successful management relies on the effective dissemination of factual information. As a social media platform with billions of daily views, YouTube has tremendous potential to both support and hinder public health efforts. However, the usefulness and accuracy of most viewed YouTube videos on COVID-19 have not been investigated. Methods A YouTube search was performed on 21 March 2020 using keywords ‘coronavirus’ and ‘COVID-19’, and the top 75 viewed videos from each search were analysed. Videos that were duplicates, non-English, non-audio and non-visual, exceeding 1 hour in duration, live and unrelated to COVID-19 were excluded. Two reviewers coded the source, content and characteristics of included videos. The primary outcome was usability and reliability of videos, analysed using the novel COVID-19 Specific Score (CSS), modified DISCERN (mDISCERN) and modified JAMA (mJAMA) scores. Results Of 150 videos screened, 69 (46%) were included, totalling 257 804 146 views. Nineteen (27.5%) videos contained non-factual information, totalling 62 042 609 views. Government and professional videos contained only factual information and had higher CSS than consumer videos (mean difference (MD) 2.21, 95% CI 0.10 to 4.32, p=0.037); mDISCERN scores than consumer videos (MD 2.46, 95% CI 0.50 to 4.42, p=0.008), internet news videos (MD 2.20, 95% CI 0.19 to 4.21, p=0.027) and entertainment news videos (MD 2.57, 95% CI 0.66 to 4.49, p=0.004); and mJAMA scores than entertainment news videos (MD 1.21, 95% CI 0.07 to 2.36, p=0.033) and consumer videos (MD 1.27, 95% CI 0.10 to 2.44, p=0.028). However, they only accounted for 11% of videos and 10% of views. Conclusion Over one-quarter of the most viewed YouTube videos on COVID-19 contained misleading information, reaching millions of viewers worldwide. As the current COVID-19 pandemic worsens, public health agencies must better use YouTube to deliver timely and accurate information and to minimise the spread of misinformation. This may play a significant role in successfully managing the COVID-19 pandemic.
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              Healthcare information on YouTube: A systematic review

              This article reviews the peer-reviewed literature addressing the healthcare information available on YouTube. Inclusion and exclusion criteria were determined, and the online databases PubMed and Web of Knowledge were searched using the search phrases: (1) YouTube* AND Health* and (2) YouTube* AND Healthcare*. In all, 18 articles were reviewed, with the results suggesting that (1) YouTube is increasingly being used as a platform for disseminating health information; (2) content and frame analysis were the primary techniques employed by researchers to analyze the characteristics of this information; (3) YouTube contains misleading information, primarily anecdotal, that contradicts the reference standards and the probability of a lay user finding such content is relatively high; (4) the retrieval of relevant videos is dependent on the search term used; and (5) videos from government organizations and professional associations contained trustworthy and high-quality information. YouTube is used as a medium for promoting unscientific therapies and drugs that are yet to be approved by the appropriate agencies and has the potential to change the beliefs of patients concerning controversial topics such as vaccinations. This review recognizes the need to design interventions to enable consumers to critically assimilate the information posted on YouTube with more authoritative information sources to make effective healthcare decisions.
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                Author and article information

                Contributors
                erkutonder@hotmail.com
                Journal
                Z Rheumatol
                Z Rheumatol
                Zeitschrift Fur Rheumatologie
                Springer Medizin (Heidelberg )
                0340-1855
                1435-1250
                1 September 2021
                : 1-8
                Affiliations
                [1 ]GRID grid.411297.8, ISNI 0000 0004 0384 345X, Department of Rheumatology, , Aksaray University Training and Research Hospital, ; 68100 Aksaray, Turkey
                [2 ]Department of Rheumatology, Dr Ersin Arslan Training and Research Hospital, Gaziantep, Turkey
                Author notes
                [Redaktion]

                Ulf Müller-Ladner, Bad Nauheim

                Uwe Lange, Bad Nauheim

                Author information
                http://orcid.org/0000-0001-9349-9530
                http://orcid.org/0000-0002-6207-8749
                Article
                1069
                10.1007/s00393-021-01069-1
                8408816
                34468808
                fa3db484-b3c0-49d3-9289-fdf821563f82
                © Springer Medizin Verlag GmbH, ein Teil von Springer Nature 2021

                This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.

                History
                : 27 July 2021
                Categories
                Originalien

                Rheumatology
                social media,internet,misinformation,video,rheumatology,soziale medien,fehlinformationen,rheumatologie

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