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      Celebrating 65 years of The Computer Journal - free-to-read perspectives - bcs.org/tcj65

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      Creating a FACETS digital toolkit to promote quality of life of people with multiple sclerosis through participatory design

      proceedings-article
      Author(s): , , , , , ,
      Publication date (Print):
      Conference name: Proceedings of the 32nd International BCS Human Computer Interaction Conference (HCI)
      Conference theme: Human Computer Interaction Conference
      Conference date: 4 - 6 July 2018
      Keywords: FACETS, Multiple Sclerosis, Fatigue, Cognitive Behavioural Model (CBM), Digital Health, Participatory Design
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            Abstract

            In this paper, we report on the first stages of creating a stand-alone digital toolkit focusing on the homework elements of FACETS (Fatigue: Applying Cognitive behavioural and Energy effectiveness Techniques to lifeStyle). FACETS is an evidence-based face-to-face fatigue management group programme for people with multiple sclerosis. This paper details the participatory design process from requirements elicitation to initial prototyping and how offline activities linked to each session have been mapped in the digitised solution (mobile app).

            Content

            Author and article information

            Contributors
            Beth Fairbanks
            Huseyin Dogan
            Nan Jiang
            Keith Pretty
            Andy Pulman
            Peter Thomas
            Sarah Thomas
            Conference
            Publication date: July 2018
            Publication date (Print): July 2018
            Pages: 1-5
            Affiliations
            [0001]Faculty of Science and Technology

            Bournemouth University
            [0002]Faculty of Health and Social Sciences

            Bournemouth University
            Article
            DOI: 10.14236/ewic/HCI2018.222
            SO-VID: 6fa58f57-044e-4a3f-96a6-de6b66c68bef
            Copyright © © Fairbanks et al. Published by BCS Learning and Development Ltd. Proceedings of British HCI 2018. Belfast, UK.
            License:

            This work is licensed under a Creative Commons Attribution 4.0 Unported License. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/

            Conference name: Proceedings of the 32nd International BCS Human Computer Interaction Conference
            Conference acronym: HCI
            Conference number: 32
            Conference location: Belfast, UK
            Conference date: 4 - 6 July 2018
            Conference sponsor: Electronic Workshops in Computing (eWiC)
            Conference theme: Human Computer Interaction Conference
            History
            Product

            1477-9358 BCS Learning & Development

            Self URI (article page): https://www.scienceopen.com/hosted-document?doi=10.14236/ewic/HCI2018.222
            Self URI (journal page): https://ewic.bcs.org/
            Categories
            Series title: Electronic Workshops in Computing

            ScienceOpen disciplines: Applied computer science,Computer science,Security & Cryptology,Graphics & Multimedia design,General computer science,Human-computer-interaction
            Keywords: FACETS,Multiple Sclerosis,Fatigue,Cognitive Behavioural Model (CBM),Digital Health,Participatory Design

            REFERENCES

            1. 1994 Case method fast-track: a RAD approach Addison-Wesley Longman Publishing Co., Inc

            2. 2016 Towards better outcomes in multiple sclerosis by addressing policy change: The International MultiPlE Sclerosis Study (IMPrESS) The London School of Economics and Political Science London

            3. 2014 Digital cognitive behaviour therapy (CBT) in Canada: Ethical considerations Canadian Psychology / Psychologie Canadienne 55 4 231 239

            4. , Davies 2018 Consultation on delivering an MS-fatigue management group programme in an online format (cFACETS) Bournemouth University Clinical Research Unit, Bournemouth

            5. 2010 Multi-centre parallel arm randomised controlled trial to assess the effectiveness and cost-effectiveness of a group-based cognitive behavioural approach to managing fatigue in people with multiple sclerosis BMC Neurology 10 1 43

            6. 2014 One year follow-up of a pragmatic multi-centre randomised controlled trial of a group-based fatigue management programme (FACETS) for people with multiple sclerosis BMC Neurology 4 1 109

            7. 2013 A pragmatic parallel arm multi-centre randomised controlled trial to assess the effectiveness and cost-effectiveness of a group-based fatigue management programme (FACETS) for people with multiple sclerosis Journal of Neurology and Neurosurgery Psychiatry 84 1092 9

            8. 2010 Development and preliminary evaluation of a cognitive behavioural approach to fatigue management in people with multiple sclerosis Patient Education and Counseling 78 240 249

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