Designing Digital Mindfulness-based Interventions for Older Informal Carers

Stress is prevalent among older informal carers and has been shown to lead to negative developments in physical and psychological health, as well as overall wellbeing. One area of wellbeing that can be impacted is sleep, with high stress levels leading to poor sleep and poor sleep causing stress. Mindfulness-based interventions (MBIs) have grown in popularity in recent years and have been shown to reduce stress and increase quality of life among older informal carers. MBIs delivered digitally have the potential to be used by and be of benefit to a wide group of people. Based on the apparent gaps in the literature concerning the area of mobile device/computer-mediated MBIs for older informal carers, further research is needed in this area. An opportunity also lies in the use of wearable activity trackers to monitor any potential improvements in sleep, due to reduced stress. This paper focuses on the design of a digital application delivering MBIs, to support older informal carers to manage stress and sleep. We describe a qualitative study with older informal carers and the resulting digital application while outlining how this system will be trialled with 15 older informal carers over a 12-week period with a view to reducing stress and improving overall wellbeing.

Content

Author and article information

Contributors

Michael Wilson

Julie Doyle

Gerry McTaggart

Conference

Publication date: July 2018

Publication date (Print): July 2018

Pages: 1-12

Affiliations

[1 ] NetwellCASALA

Dundalk Institute of Technology

Dundalk, Ireland

[2 ] School of Health and Science

Dundalk Institute of Technology

Dundalk, Ireland

Article

DOI: 10.14236/ewic/HCI2018.52

SO-VID: fa6e2984-944e-497b-97b8-4a0aa5289028

License:

This work is licensed under a Creative Commons Attribution 4.0 Unported License. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/

Conference name: Proceedings of the 32nd International BCS Human Computer Interaction Conference

Conference acronym: HCI

Conference number: 32

Conference location: Belfast, UK

Conference date: 4 - 6 July 2018

Conference sponsor: Electronic Workshops in Computing (eWiC)

Conference theme: Human Computer Interaction Conference

History

Product

1477-9358 BCS Learning & Development

Self URI (article page): https://www.scienceopen.com/hosted-document?doi=10.14236/ewic/HCI2018.52

Self URI (journal page): https://ewic.bcs.org/

REFERENCES

J. E. BardramM. FrostK. SzántóM. Faurholt-JepsenM. VinbergL. Kessing 2013 Designing mobile health technology for bipolar disorder: a field trial of the monarca system Proceedings of CHI 2013 2627 2636 http://doi.org/10.1145/2470654.2481364
M. Bulmer 1992 The Social Basis of Community Care In Bornat, J. Community Care: A Reader. Open University DOI 10.1007/978-1-349-26087-4_5
K. VasileiouJ. BarnettM. BarretoJ. VinesM. AtkinsonS. LawsonM. Wilson 2017 Experiences of loneliness associated with being an informal caregiver: A qualitative investigation Frontiers in Psychology 8 APR http://doi.org/10.3389/fpsyg.2017.00585
Carers UK 2009 Policy Briefing: Facts about Carers. www.carersuk.org/Professionals/ResourcesandBriefings/PolicybriefingsFactsaboutcarersJun e2009.pdf
Y. KamiyaC. MurphyG. SavvaV. Timonen 2012 Profile Of Community- Dwelling Older People With Disability And Their Caregivers In Ireland http://tilda.tcd.ie/assets/pdf/Carer%20Report.pdf
B. H. BrummettM. A. BabyakI. C. SieglerP. P. VitalianoE. L. BallardL. P. GwytherR. B. Williams 2006 Associations among perceptions of social support, negative affect, and quality of sleep in caregivers and noncaregivers Health Psychology 25 2 http://doi.org/10.1037/0278-6133.25.2.220
Care Alliance 2012 Family Caring in Ireland [online] Available from: ?http://www.carealliance.ie/userfiles/file/Report%202013%20FA%20130513.pdf
Y. ChenV. NgoP. S. Young 2013 Caring for Caregivers: Designing for Integrality In Proceedings of the 2013 conference on Computer supported cooperative work 91-102 18 20 http://doi.org/10.1145/2441776.2441789
R. J. V. MontgomeryK. Kosloski 2009 Caregiving as a Process of Changing Identity: Implications for Caregiver Support Generations 33 1 47 52
P. AdamsM. RabbiT. RahmanM. MatthewsA. VoidaG. GayT. Choudhury, ?S. Voida 2014 Towards personal stress informatics: comparing minimally invasive techniques for measuring stress in the wild In Pervasive Health 2014 72 79 http://eudl.eu/doi/10.4108/icst.pervasivehealth.2014.254959
E. BohlmeijerR. PrengerE. TaalP. Cuijpers 2010 The effects of mindfulness- based stress reduction therapy on mental health of adults with a chronic medical disease: a meta-analysis Journal of Psychosomatic Research 68 539 544
J.S. BauerS. ConsolvoB. GreensteinJ. SchoolerE. WuN.F. WatsonJ. Kientz 2011 ShutEye: Encouraging awareness of healthy sleep awareness with a mobile, peripheral display In CHI 2012 1401 1410 http://dl.acm.org/citation.cfm?doid=2207676.2208600
D.S. BlackG.A. O‟ReillyR. OlmsteadE.C. BreenM.R. Irwin 2015 Mindfulness Meditation and Improvement in Sleep Quality and Daytime Impairment Among Older Adults With Sleep Disturbances: A Randomized Clinical Trial In JAMA Internal Medicine 175 4
A. ChiesaA. Serretti 2011 Mindfulness-based interventions for chronic pain: a ?systematic review of the evidence The Journal of Alternative and Complementary Medicine 17 83 93
M. DharmawardeneJ. GivensA. WachholtzS. MakowskiJ. Tjia 2016 A systematic review and meta- analysis of meditative interventions for informal caregivers and health professionals BMJ Supportive & Palliative Care 6 160 169 http://doi.org/10.1136/bmjspcare-2014-000819
H. WahbehE. GoodrichB.S. Oken Internet-based Mindfulness Meditation for Cognition and Mood in Older Adults: A Pilot Study Alternative Therapies 2016 Mar 22 2 44 53
D.M. FrescoJ.J. FlynnD. MenninE.A.P. Haigh 2010 Mindfulness Based Cognitive Therapy J. D. HerbertE. Forman (eds) Acceptance and Mindfulness in Cognitive Behavior Therapy Wiley
S. MallyaA. J. Fiocco 2016 Effects of Mindfulness Training on Cognition and Well-Being in Healthy Older Adults Mindfulness 7 2 453 465 http://doi.org/10.1007/s12671-015-0468-6
G.R. Dutton 2008 The Role of Mindfulness in Health Behavior Change ACSM s Health & Fitness Journal 12 4 7 12 10.1249/FIT.0b013e31817bf5db
J. L. KristellerR. A. BaerR. Quillian-Wolever 2006 Mindfulness-Based Approaches to Eating Disorders In Mindfulness-Based Treatment Approaches 75 91 Elsevier Inc. http://doi.org/10.1016/B978-012088519-0/50005-8
R. TkatchD. BazarkoS. MusichL. WuS. MacLeodK. Keown, … E. Wicker 2017 A Pilot Online Mindfulness Intervention to Decrease Caregiver Burden and Improve Psychological Well-Being Journal of Evidence-Based Complementary and Alternative Medicine 22 4 736 743 http://doi.org/10.1177/2156587217737204
E. HelmesB. G. Ward 2017 Mindfulness-based cognitive therapy for anxiety symptoms in older adults in residential care Aging & Mental Health 21 3 272 278 http://doi.org/10.1080/13607863.2015.1111862
F. NunesN. VerdezotoG. FitzpatrickM. KyngE. GrönvallC. Storni 2015 Self-Care Technologies in HCI ACM Transactions on Computer-Human Interaction 22 6 1 45 http://doi.org/10.1145/2803173
J. DoyleL. WalshA. SassuT. McDonagh 2014 Designing a Wellness Self- management tool for older adults – results from a field trial of YourWellness In Proceedings of the 8th International Conference on Pervasive Computing Technologies for Healthcare (Oldenburg, Germany May 20-23, 2014) Pervasive Health 134 141
M. WilliamsD. Penman 2011 Mindfulness: a practical guide to finding peace in a frantic world. Hachette UK
P. L. VisserJ. K. HirschK. W. BrownR. RyanJ. A. Moynihan 2015 Components of Sleep Quality as Mediators of the Relation Between Mindfulness and Subjective Vitality Among Older Adults Mindfulness 6 4 723 731 http://doi.org/10.1007/s12671-014-0311-5
P. KlasnjaS. ConsolvoW. Pratt How to evaluate technologies for health behaviour change research In CHI ‟11 2011

Comments

Comment on this article

[1] J. E. BardramM. FrostK. SzántóM. Faurholt-JepsenM. VinbergL. Kessing 2013 Designing mobile health technology for bipolar disorder: a field trial of the monarca system Proceedings of CHI 2013 2627 2636 http://doi.org/10.1145/2470654.2481364

[2] M. Bulmer 1992 The Social Basis of Community Care In Bornat, J. Community Care: A Reader. Open University DOI 10.1007/978-1-349-26087-4_5

[3] K. VasileiouJ. BarnettM. BarretoJ. VinesM. AtkinsonS. LawsonM. Wilson 2017 Experiences of loneliness associated with being an informal caregiver: A qualitative investigation Frontiers in Psychology 8 APR http://doi.org/10.3389/fpsyg.2017.00585

[4] Carers UK 2009 Policy Briefing: Facts about Carers. www.carersuk.org/Professionals/ResourcesandBriefings/PolicybriefingsFactsaboutcarersJun e2009.pdf

[5] Y. KamiyaC. MurphyG. SavvaV. Timonen 2012 Profile Of Community- Dwelling Older People With Disability And Their Caregivers In Ireland http://tilda.tcd.ie/assets/pdf/Carer%20Report.pdf

[6] B. H. BrummettM. A. BabyakI. C. SieglerP. P. VitalianoE. L. BallardL. P. GwytherR. B. Williams 2006 Associations among perceptions of social support, negative affect, and quality of sleep in caregivers and noncaregivers Health Psychology 25 2 http://doi.org/10.1037/0278-6133.25.2.220

[7] Care Alliance 2012 Family Caring in Ireland [online] Available from: ?http://www.carealliance.ie/userfiles/file/Report%202013%20FA%20130513.pdf

[8] Y. ChenV. NgoP. S. Young 2013 Caring for Caregivers: Designing for Integrality In Proceedings of the 2013 conference on Computer supported cooperative work 91-102 18 20 http://doi.org/10.1145/2441776.2441789

[9] R. J. V. MontgomeryK. Kosloski 2009 Caregiving as a Process of Changing Identity: Implications for Caregiver Support Generations 33 1 47 52

[10] P. AdamsM. RabbiT. RahmanM. MatthewsA. VoidaG. GayT. Choudhury, ?S. Voida 2014 Towards personal stress informatics: comparing minimally invasive techniques for measuring stress in the wild In Pervasive Health 2014 72 79 http://eudl.eu/doi/10.4108/icst.pervasivehealth.2014.254959

[11] E. BohlmeijerR. PrengerE. TaalP. Cuijpers 2010 The effects of mindfulness- based stress reduction therapy on mental health of adults with a chronic medical disease: a meta-analysis Journal of Psychosomatic Research 68 539 544

[12] J.S. BauerS. ConsolvoB. GreensteinJ. SchoolerE. WuN.F. WatsonJ. Kientz 2011 ShutEye: Encouraging awareness of healthy sleep awareness with a mobile, peripheral display In CHI 2012 1401 1410 http://dl.acm.org/citation.cfm?doid=2207676.2208600

[13] D.S. BlackG.A. O‟ReillyR. OlmsteadE.C. BreenM.R. Irwin 2015 Mindfulness Meditation and Improvement in Sleep Quality and Daytime Impairment Among Older Adults With Sleep Disturbances: A Randomized Clinical Trial In JAMA Internal Medicine 175 4

[14] A. ChiesaA. Serretti 2011 Mindfulness-based interventions for chronic pain: a ?systematic review of the evidence The Journal of Alternative and Complementary Medicine 17 83 93

[15] M. DharmawardeneJ. GivensA. WachholtzS. MakowskiJ. Tjia 2016 A systematic review and meta- analysis of meditative interventions for informal caregivers and health professionals BMJ Supportive & Palliative Care 6 160 169 http://doi.org/10.1136/bmjspcare-2014-000819

[16] H. WahbehE. GoodrichB.S. Oken Internet-based Mindfulness Meditation for Cognition and Mood in Older Adults: A Pilot Study Alternative Therapies 2016 Mar 22 2 44 53

[17] D.M. FrescoJ.J. FlynnD. MenninE.A.P. Haigh 2010 Mindfulness Based Cognitive Therapy J. D. HerbertE. Forman (eds) Acceptance and Mindfulness in Cognitive Behavior Therapy Wiley

[18] S. MallyaA. J. Fiocco 2016 Effects of Mindfulness Training on Cognition and Well-Being in Healthy Older Adults Mindfulness 7 2 453 465 http://doi.org/10.1007/s12671-015-0468-6

[19] G.R. Dutton 2008 The Role of Mindfulness in Health Behavior Change ACSM s Health & Fitness Journal 12 4 7 12 10.1249/FIT.0b013e31817bf5db

[20] J. L. KristellerR. A. BaerR. Quillian-Wolever 2006 Mindfulness-Based Approaches to Eating Disorders In Mindfulness-Based Treatment Approaches 75 91 Elsevier Inc. http://doi.org/10.1016/B978-012088519-0/50005-8

[21] R. TkatchD. BazarkoS. MusichL. WuS. MacLeodK. Keown, … E. Wicker 2017 A Pilot Online Mindfulness Intervention to Decrease Caregiver Burden and Improve Psychological Well-Being Journal of Evidence-Based Complementary and Alternative Medicine 22 4 736 743 http://doi.org/10.1177/2156587217737204

[22] E. HelmesB. G. Ward 2017 Mindfulness-based cognitive therapy for anxiety symptoms in older adults in residential care Aging & Mental Health 21 3 272 278 http://doi.org/10.1080/13607863.2015.1111862

[23] F. NunesN. VerdezotoG. FitzpatrickM. KyngE. GrönvallC. Storni 2015 Self-Care Technologies in HCI ACM Transactions on Computer-Human Interaction 22 6 1 45 http://doi.org/10.1145/2803173

[24] J. DoyleL. WalshA. SassuT. McDonagh 2014 Designing a Wellness Self- management tool for older adults – results from a field trial of YourWellness In Proceedings of the 8th International Conference on Pervasive Computing Technologies for Healthcare (Oldenburg, Germany May 20-23, 2014) Pervasive Health 134 141

[25] M. WilliamsD. Penman 2011 Mindfulness: a practical guide to finding peace in a frantic world. Hachette UK

[26] P. L. VisserJ. K. HirschK. W. BrownR. RyanJ. A. Moynihan 2015 Components of Sleep Quality as Mediators of the Relation Between Mindfulness and Subjective Vitality Among Older Adults Mindfulness 6 4 723 731 http://doi.org/10.1007/s12671-014-0311-5

[27] P. KlasnjaS. ConsolvoW. Pratt How to evaluate technologies for health behaviour change research In CHI ‟11 2011

Celebrating 65 years of The Computer Journal - free-to-read perspectives - bcs.org/tcj65