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      Adapting community based participatory research (CBPR) methods to the implementation of an asthma shared decision making intervention in ambulatory practices

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          Abstract

          Objective

          Translating research findings into clinical practice is a major challenge to improve the quality of healthcare delivery. Shared decision making (SDM) has been shown to be effective and has not yet been widely adopted by health providers. This paper describes the participatory approach used to adapt and implement an evidence-based asthma SDM intervention into primary care practices.

          Methods

          A participatory research approach was initiated through partnership development between practice staff and researchers. The collaborative team worked together to adapt and implement a SDM toolkit. Using the RE-AIM framework and qualitative analysis, we evaluated both the implementation of the intervention into clinical practice, and the level of partnership that was established. Analysis included the number of adopting clinics and providers, the patients’ perception of the SDM approach, and the number of clinics willing to sustain the intervention delivery after 1 year.

          Results

          All six clinics and physician champions implemented the intervention using half-day dedicated asthma clinics while 16% of all providers within the practices have participated in the intervention. Themes from the focus groups included the importance of being part the development process, belief that the intervention would benefit patients, and concerns around sustainability and productivity. One year after initiation, 100% of clinics have sustained the intervention, and 90% of participating patients reported a shared decision experience.

          Conclusions

          Use of a participatory research process was central to the successful implementation of a SDM intervention in multiple practices with diverse patient populations.

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          Most cited references33

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          Diffusion of Innovations.

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            Shared Treatment Decision Making Improves Adherence and Outcomes in Poorly Controlled Asthma

            American Journal of Respiratory and Critical Care Medicine, 181(6), 566-577
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              Community-based research partnerships: challenges and opportunities.

              The complexity of many urban health problems often makes them ill suited to traditional research approaches and interventions. The resultant frustration, together with community calls for genuine partnership in the research process, has highlighted the importance of an alternative paradigm. Community-based participatory research (CBPR) is presented as a promising collaborative approach that combines systematic inquiry, participation, and action to address urban health problems. Following a brief review of its basic tenets and historical roots, key ways in which CBPR adds value to urban health research are introduced and illustrated. Case study examples from diverse international settings are used to illustrate some of the difficult ethical challenges that may arise in the course of CBPR partnership approaches. The concepts of partnership synergy and cultural humility, together with protocols such as Green et al.'s guidelines for appraising CBPR projects, are highlighted as useful tools for urban health researchers seeking to apply this collaborative approach and to deal effectively with the difficult ethical challenges it can present.
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                Author and article information

                Journal
                J Asthma
                J Asthma
                JAS
                The Journal of Asthma
                Informa Healthcare USA, Inc.
                0277-0903
                1532-4303
                May 2014
                24 January 2014
                : 51
                : 4
                : 380-390
                Affiliations
                1Department of Family Medicine, Carolinas Healthcare System Charlotte, NCUSA
                2Department of Health Services Research, Palo Alto Medical Foundation Research Institute Palo Alto, CAUSA
                Author notes
                Hazel TappDepartment of Family Medicine, Carolinas Healthcare System 2001 Vail Avenue, Charlotte, NC 28207USA+1 704 304 7120 Hazel.tapp@ 123456carolinashealthcare.org
                Article
                10.3109/02770903.2013.876430
                4002642
                24350877
                62696dcf-fdb0-4b9f-8ad0-0ede718ad12f
                © 2014 Informa Healthcare USA, Inc. All rights reserved: reproduction in whole or part not permitted

                This is an open-access article distributed under the terms of the Creative Commons Attribution Noncommercial License which permits any noncommercial use, distribution, and reproduction in any medium, provided the source is credited.

                History
                : 12 February 2013
                : 26 November 2013
                : 12 December 2013
                Categories
                Asthma in the Primary Care Setting

                Immunology
                asthma interventions,implementation in outpatient clinics,participatory approach,shared decision making,vulnerable population

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