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      Thanks for hearing me: key elements of primary care according to older patients

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          Abstract

          Objective: When organising healthcare and planning for research to improve healthcare, it is important to include the patients’ own perceptions. Therefore, the aim was to explore older patients’ views on what is important concerning their current care and possible future interventions in a primary care setting. Design: A qualitative design with individual interviews was used. Analysis through latent content analysis. Setting: Seven Swedish primary care centres. Subjects: Patients (n 30) aged >75 years, connected to elder care teams in primary healthcare. Results: Three categories, consisting of 14 sub-categories in total, were found, namely: Care characterised by easy access, continuity and engaged staff builds security; Everyday life and Plans in late life. The overarching latent theme Person-centred care with easy access, continuity and engaged staff gave a deeper meaning to the content of the categories and sub-categories. Conclusion: It is important to organise primary care for older people through conditions which meet up with their specific needs. Our study highlights the importance of elder care teams facilitating the contact with healthcare, ensuring continuity and creating conditions for a person-centred care. There were variations regarding preferences about training and different views on conversations about end-of-life, which strengthens the need for individualisation and personal knowledge. This study also exemplifies qualitative individual interviews as an approach to reach older people to be part of a study design and give input to an upcoming research intervention, as the interviews contribute with important information of value in the planning of the Swedish intervention trial Secure and Focused Primary Care for Older pEople (SAFE).

          KEY POINTS

          • In this qualitative interview study, the three categories Care characterised by easy access, continuity and engaged staff builds security; Everyday life and Plans in late life with underlying sub-categories describe the older patients’ views on what is important in their current care and possible future interventions in a Swedish primary care setting.

          • The latent theme ‘Person-centred care with easy access, continuity and engaged staff’ was formed to give a deeper meaning to the content of the categories and sub-categories.

          • Having a permanent care contact with a responsible nurse in an elder care team and a personal doctor (most often a general practitioner) over time seems important for vulnerable older patients with high risk of hospitalisation.

          • The study suggests qualitative individual interviews as an approach to increase older peoples’ participation in future clinical complex study designs.

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          Most cited references40

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          Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness.

          Qualitative content analysis as described in published literature shows conflicting opinions and unsolved issues regarding meaning and use of concepts, procedures and interpretation. This paper provides an overview of important concepts (manifest and latent content, unit of analysis, meaning unit, condensation, abstraction, content area, code, category and theme) related to qualitative content analysis; illustrates the use of concepts related to the research procedure; and proposes measures to achieve trustworthiness (credibility, dependability and transferability) throughout the steps of the research procedure. Interpretation in qualitative content analysis is discussed in light of Watzlawick et al.'s [Pragmatics of Human Communication. A Study of Interactional Patterns, Pathologies and Paradoxes. W.W. Norton & Company, New York, London] theory of communication.
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            A new framework for developing and evaluating complex interventions: update of Medical Research Council guidance

            The UK Medical Research Council’s widely used guidance for developing and evaluating complex interventions has been replaced by a new framework, commissioned jointly by the Medical Research Council and the National Institute for Health Research, which takes account of recent developments in theory and methods and the need to maximise the efficiency, use, and impact of research.
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              Qualitative research: standards, challenges, and guidelines.

              K Malterud (2001)
              Qualitative research methods could help us to improve our understanding of medicine. Rather than thinking of qualitative and quantitative strategies as incompatible, they should be seen as complementary. Although procedures for textual interpretation differ from those of statistical analysis, because of the different type of data used and questions to be answered, the underlying principles are much the same. In this article I propose relevance, validity, and reflexivity as overall standards for qualitative inquiry. I will discuss the specific challenges in relation to reflexivity, transferability, and shared assumptions of interpretation, which are met by medical researchers who do this type of research, and I will propose guidelines for qualitative inquiry.
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                Author and article information

                Journal
                Scand J Prim Health Care
                Scand J Prim Health Care
                Scandinavian Journal of Primary Health Care
                Taylor & Francis
                0281-3432
                1502-7724
                21 February 2024
                2024
                21 February 2024
                : 42
                : 2
                : 304-315
                Affiliations
                [a ]Department of Health, Medicine and Caring Sciences, Linköping University , Linköping, Sweden
                [b ]Primary Health Care Centre in Ekholmen and Department of Health, Medicine and Caring Sciences, Linköping University , Linköping, Sweden
                [c ]Department of Activity and Health in Linköping, and Department of Health, Medicine and Caring Sciences, Linköping University , Linköping, Sweden
                [d ]Department of Acute Internal Medicine and Geriatrics, and Department of Health, Medicine and Caring Sciences, Linköping University , Linköping, Sweden
                [e ]Pain and Rehabilitation Center, and Department of Activity and Health, and Department of Health, Medicine and Caring Sciences, Linköping University , Linköping, Sweden
                Author notes
                CONTACT Lisa Kastbom lisa.kastbom@ 123456liu.se Department of Health, Medicine and Caring Sciences, Linköping University , pl 14, S-581 83 Linköping, Sweden.
                Author information
                https://orcid.org/0000-0002-9860-7593
                https://orcid.org/0000-0003-4166-7269
                https://orcid.org/0000-0002-1188-4273
                https://orcid.org/0000-0001-8111-7742
                Article
                2317833
                10.1080/02813432.2024.2317833
                11003314
                38380956
                b3c9c904-11af-49aa-927b-25cbf0a2b429
                © 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

                This is an Open Access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.

                History
                Page count
                Figures: 1, Tables: 1, Pages: 12, Words: 8539
                Categories
                Research Article
                Research Articles

                older adults,patient-centered care,patient participation,primary health care,qualitative research

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